~Living with Lymphoma~
A glimmer of hope was waiting for us at my appointment with my Boston Hematologist today. I brought a CD of my last three PET Scans for Dr. Jacobson to look at. He explained that although the area that still lights up lit up a little more than on the scan I had just after I finished chemo, the area itself was not any bigger. So, being in a position of a second opinion person as a major Lymphoma expert, I’m sure he knows that people are more likely than not to take his advice, so he better be considering all possibilities.
He said that there are many false positives with PET Scans and the fact that the area is not any bigger requires him to consider that maybe the Lymphoma is gone. He can’t endorse sending someone into a stem cell transplant phase without more definitive evidence that they actually need one because it’s a harsh series of treatments and recovery. He recommended that I have biopsy of the area that lights up. If it comes up positive for lymphoma, then I begin the process for a stem cell transplant. If the results of the biopsy are questionable or “negative” (I’m sure there are also false negatives), then he recommends that I have another PET Scan in three months.
So, my next assignment is to have the biopsy. I have another appointment with the local stem cell transplant doctor next week and she’ll hook me up with the group who will do the biopsy.
I’m an expert on waiting by now. And at the moment it’s easier to wait because I feel good and can conduct my life in a “normal” fashion by working, taking care of my mother, etc. So, the glimmer of hope we received today will enhance my mission to live with as little fear and worry about my situation as possible.
Brian and I went to Boston last night because of the storm forecasted for our area and the Boston area. It started snowing at 9am this morning in Boston, and by the time we left Dana Farber, the roads were a mess. Brian drove 170 miles in a raging storm, and we made it home without incident.
We have angels following us at every turn.