Living with Lymphoma.
I had my appointment with my Hematologist today, and unfortunately, my PET Scan from Monday showed residual disease. My Hematologist has recommended three rounds of a different and harsher kind of Chemo to wipe out the disease, and then have a Stem Cell Transplant. The transplant he’s referring to will be using my own stem cells which will need to be harvested and put back in. I’m not sure of all of the procedures or the sequences yet, but I’m sure I’ll be close to an expert some day.
My doctor wants me to go back to Boston for a second opinion about this. I already have an appointment for that next Thursday, and I have another appointment with our local Stem Cell Transplant Doctor here in town on the February 15th. So the next route of treatment is not set in stone yet.
As I look back on my unplanned expedition, I realize that I started not feeling well last February. It’s been a year now, and so much has changed for me. I’m going to be contemplating how this has affected me in all ways, including physically, emotionally, spiritually, etc., and likely writing about it. It’ll be therapeutic to continue sharing my story with all of you, even though I know I don’t know some of you. I thank all who have read my stories. I indebted and grateful.
I painted the scene below this week with my friend Ben, and my friend Trish wrote a poem to go with it that I thought was absolutely beautiful. Wonderful connections with people I know and people I don’t know is the gold ribbon that keeps me going.
A Shadow Set Aside
She bustled out in haste beneath a red umbrella
-that elegant extension of her soul.
Never for a moment to be thought of, or thoughtlessly left behind.
Soon her lonely purpose slowed to the pace of the surrounding fog
a slight smile
the worry set aside for a time
is one of beauty.
The other day, a friend of mine said to me:
“You have to win, and so you will”.
It’s been my mantra all week.
I know this was not good news, but I haven’t given up hope.