Living my life with lymphoma.
Since my last post, I’ve met with a radiation oncologist and a stem cell transplant (SCT) physician. I learned that I’m not a candidate for radiation because of where the area of disease is located and the size of it. Although most of the area is disease-free, it’s speckled throughout and radiating that large of an area would cause permanent kidney damage. We agreed that fixing one enormous problem would only cause another one, so radiation is not an option.
Next, I met with the SCT doctor who ultimately said that I don’t look like a person who needs a SCT. She explained some complicated things about some components of my disease and the fact that I’ve only had one line of chemo. She discussed this with my hematologist and the doctor I saw in Boston in July and initially said that she thought that 1-2 more rounds of chemo would do the trick. Then they all agreed that the chemo that I had (6 rounds) is likely still working and recommends another PET scan in 6 weeks. My hematologist also said that the research suggests that two more rounds of chemo is not likely to be beneficial and can become toxic.
So, this past week has been a combination of waiting, wondering, worrying, mentally preparing for a STC or more chemo, and an abundance of uncertainty. I’m left having to put my faith in my medical team, knowing that they are doing their best with the knowledge and experience they have, which far surpasses mine.
As I write this, it’s snowing and looks amazingly beautiful. I even feel well enough to shovel. I tell people that if I didn’t know I had a disease, I wouldn’t know I have a disease.
I feel good and for today, that’s good enough.